The unknown story of the only leprosy
colony in the continental United States,
and the thousands of Americans who
were exiled―hidden away with their
“shameful” disease.
Between Baton Rouge and New Orleans,
the Mississippi River curls around an old
plantation thick with trees, with a stately
white manor house at its heart. Locals
knew it asCarville―the site of the only
leprosarium in the continental United
States from 1894 until 1999, where
generations of afflicted Americans were
isolated, often until death. While experts
today know that leprosy is not nearly as
contagious as once feared, there remains
a virulent stigma around those who suffer
from it.
Pam Fessler tells the story of Carville’s
patients against the backdrop of America’s
slowly shifting attitudes toward those cast
aside as “others.” She also reveals how
patients rallied together with an unlikely
team of nuns, researchers, and doctors to
find a cure for the disease, and to fight the
insidious stigma that surrounded it. With
original interviews and newly discovered
archival material, Fessler presents an
essential history of one of America’s most
shameful secrets.
Carville's Cure
Leprosy, Stigma,
and the Fight for Justice
by Pam Fessler,
is set to be published on
July 14, 2020 by Liveright.
What People Are Saying
“Carville’s Cure is a powerful story of all the
ways that infectious diseases bring out the
best and the worst in people: hope and
fear, science and faith, humanity and
cruelty. Whether you know the history of
Hansen’s disease or not, whether you’ve
been touched by this story personally (as
the author has) or not, this book will speak
to you. It is the very best kind of history:
one that is alive with the people whose
story it tells, and one that teaches us how
to face challenges we will face in the
future. It will move you."
— Ron Klain, White House Ebola
Response Coordinator, 2014-15
"Throughout my professional life, I’ve
traveled to many places and at many times
tried to explain Carville to people around
the world. Compared to Pam’s efforts mine
were feeble. This is an excellent story of
my hometown."
— James Carville, political strategist
“Few diseases cause as much
apprehension as leprosy. Even today, in
this age of cures, the very mention is like
a tolling bell – a dire warning of disruption
and death. NPR journalist Pam Fessler has
put her considerable professional and
personal skills to work, unmasking the
history and stigma of this ancient disease.
That stigma, which lingers despite
scientific evidence, dissipates
with this book. Fessler’s skills as a
journalist and humanist shine new light
on old terrors, with well-told stories of
lives and science."
— Susan Stamberg, Special
Correspondent, NPR
“By turns heart-wrenching, inspiring, and
infuriating, this is a fast-paced and highly
readable account of attempts by patients,
their families, doctors and American
society in general to deal with the worlds’
most misunderstood disease. Written
with the eye of an experienced journalist
and the voice of a novelist, this book tells
the story – stranger than fiction -- of the
patients, nuns, doctors, movie stars, and
politicians who have struggled to come to
terms with the stigma and discrimination
attached to leprosy. The book is
painstakingly researched and documented,
and unfolds dramatically through the
words of the patients and other
participants through their letters and
personal papers as well as newspaper
accounts and interviews.”
— Dr. David Scollard, retired director,
National Hansen’s Disease Program