The unknown story of the only leprosy
colony in the continental United States,
and the thousands of Americans who
were exiled―hidden away with their
“shameful” disease.
Between Baton Rouge and New Orleans,
the Mississippi River curls around an old
plantation thick with trees, with a stately
white manor house at its heart. Locals
knew it asCarville―the site of the only
leprosarium in the continental United
States from 1894 until 1999, where
generations of afflicted Americans were
isolated, often until death. While experts
today know that leprosy is not nearly as
contagious as once feared, there remains
a virulent stigma around those who suffer
from it.
Pam Fessler tells the story of Carville’s
patients against the backdrop of America’s
slowly shifting attitudes toward those cast
aside as “others.” She also reveals how
patients rallied together with an unlikely
team of nuns, researchers, and doctors to
find a cure for the disease, and to fight the
insidious stigma that surrounded it. With
original interviews and newly discovered
archival material, Fessler presents an
essential history of one of America’s most
shameful secrets.
Praise for Carville’s Cure
“Pam Fessler’s fascinating Carville’s Cure
... remarkable and vivid ... meticulously
researched account illuminates the
endless ways, large and small, in which
those confined to Carville sought to
determine the shape of their own lives.”
— By Laura Kolbe
The Wall Street Journal, Aug 8, 2020
“Carville’s Cure is a powerful story of all the
ways that infectious diseases bring out the
best and the worst in people: hope and
fear, science and faith, humanity and
cruelty. It is the very best kind of history:
one that is alive with the people whose
story it tells, and one that teaches us how
to face challenges we will face in the
future. It will move you."
— Ron Klain, White House Ebola
Response Coordinator, 2014-15
"Throughout my professional life, I’ve
traveled to many places and at many times
tried to explain Carville to people around
the world. Compared to Pam’s efforts mine
were feeble. This is an excellent story of
my hometown."
— James Carville, political strategist
“[A] fine history, by turns heartbreaking
and infuriating … Fessler paints a clear
picture of a class of people who were
confined at Carville typically for life,
isolated, stripped of their identities [and]
their civil rights … Vignettes of the patients,
some tracked over decades, humanize the
story ... told with empathy and a sharp eye
for society’s intolerances.”
— Kirkus Review
“NPR journalist Pam Fessler has
put her considerable professional and
personal skills to work, unmasking the
history and stigma of this ancient disease.
That stigma, which lingers despite
scientific evidence, dissipates with
this book. Fessler’s skills as a journalist
and humanist shine new light on old
terrors, with well-told stories of lives
and science."
— Susan Stamberg, Special
Correspondent, NPR
“By turns heart-wrenching, inspiring, and
infuriating, this is a fast-paced and highly
readable account of attempts by patients,
their families, doctors and American
society in general to deal with the worlds’
most misunderstood disease. Written
with the eye of an experienced journalist
and the voice of a novelist, this book tells
the story – stranger than fiction -- of the
patients, nuns, doctors, movie stars, and
politicians who have struggled to come to
terms with the stigma and discrimination
attached to leprosy. The book is
painstakingly researched and documented,
and unfolds dramatically through the
words of the patients and other
participants through their letters and
personal papers as well as newspaper
accounts and interviews.”
— Dr. David Scollard, retired director,
National Hansen’s Disease Program
“Pam Fessler's powerful book combines
fascinating medical history with a deeply
moving family story about a disease that
has been misunderstood and stigmatized
since the Old Testament.”
— David Maraniss, Pulitzer Prize-
winning author of A Good American
Family: The Red Scare and My Father
“Pam Fessler's extraordinary knack for
story-telling brings home the shameful
history of discrimination and exile of those
battling leprosy. At the same time, she lifts
up the resilience and humanity of a
community largely erased from our history.
It's a moving and passionate appeal to our
consciences.”
— EJ Dionne, author of Code Red: How
Progressives and Moderates Can Unite
to Save Our Country
“Behind barbed wire on a onetime sugar
plantation on the Louisiana bayou,
generations of Americans who had the bad
luck to contract leprosy were forcibly
confined by their own government,
stripped of their most basic rights, and left
to suffer and die. Pam Fessler, by shining a
light on their stories - including a surprising
family connection of her own - has
redeemed them. She has also left us with
a sobering reminder of the costs of
demonizing disease and provided a must-
read for this time of new infectious threats”
— Meredith Wadman, M.D., Science
Magazine reporter and author of The
Vaccine Race: Science, Politics and the
Human Costs of Defeating Disease
"NPR correspondent Fessler’s polished
and compassionate debut examines the
history of Hansen’s disease (the modern
name for leprosy) in America through the
story of the Louisiana Leper Home in
Carville, La. In the 1890s, New Orleans
dermatologist Isadore Dyer established
the quarantine facility for leprosy patients
on the grounds of a defunct sugar
plantation. In 1921, the U.S. Public Health
Service took over Carville (as it was called
by locals), making it the only national
leprosarium in America. Fessler profiles
several patients (most of whom were sent
to Carville by mandatory state reporting
laws), including her husband’s
grandfather, and New Orleans debutante
Betty Parker, who fell in love with a
fellow patient and ran away with him.
Fessler also documents the 1941
discovery that the antibiotic promin
could be effective in treating Hansen’s
disease, and notes that by the 1980s
additional medicines had slowed new
outbreaks and made most cases
manageable. Carville’s planned shutdown
was delayed until 1999, Fessler writes,
because many remaining patients had
nowhere else to go. Her well-researched
and articulate account humanizes
sufferers and caregivers alike, and
offers hope in the medical field’s
ability to halt the spread of contagious
illness. Readers will be enlightened and
encouraged.”
— Review April 8, 2020 by
“Fessler presents inspiring and tragic
stories of patients who mostly experienced
Carville as a prison, sometimes a sanctuary
... Heartbreaking and infuriating.”
— Tony Miksanek, Booklist